2026-08-27 10:12 AM UTC / 路透社
作者：罗宾·雷斯波特
2026年8月27日 10:12 AM UTC 更新于1小时前
美国卫生与公众服务部（HHS）部长小罗伯特·F·肯尼迪在华盛顿特区卫生与公众服务部举行的新闻发布会上，介绍美国疾病控制与预防中心（CDC）最新自闭症与发育障碍监测（ADDM）网络调查结果，…… 购买授权，打开新标签页 查看更多
8月27日 路透社电 — 美国自闭症咨询委员会拟提议联邦机构将自闭症相关医疗照护、住房、养老及其他支持自闭症患者及其家庭的举措与研究投入规模扩大近一倍。
由卫生部长小罗伯特·F·肯尼迪今年任命的联邦咨询委员会——跨部门自闭症协调委员会（IACC）成员将于周四开会，讨论其重塑联邦自闭症工作优先级的新战略计划。
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该草案于上月在IACC官网公开，建议将美国国立卫生研究院、美国疾病控制与预防中心及其他机构的相关投入从每年3.904亿美元增至7.474亿美元，以解决影响自闭症患者及其家庭的一系列广泛问题。
草案称，相较于自闭症带来的经济负担，当前联邦支出低于阿尔茨海默病、哮喘等其他疾病。
IACC将就自闭症相关工作优先级向联邦政府提供非约束性指导。
肯尼迪在加入特朗普政府前长期从事反疫苗活动，多年来一直宣扬疫苗与自闭症存在关联，而科学家称，针对数百万儿童开展的多年研究已彻底驳斥了这一说法。
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该委员会的战略计划草案未提及疫苗或自闭症与疫苗关联的研究。
核心优先级：聚焦重度自闭症患者
这份详细计划包含两大核心优先级：一是紧急改善自闭症患者的医疗照护与研究；二是为自闭症患者全生命周期提供支持，尤其是那些有复杂需求的群体。
“重度自闭症或需要最高级别照护的人群在以往战略计划中代表性不足，在自闭症研究领域更是明显缺位，”IACC主席、哈佛医学院讲师西尔维亚·福格尔博士表示。“我们制定这份计划就是为了纠正这种不公平。”
将自闭症作为美国卫生与公众服务部重点工作的肯尼迪，已通过一项5000万美元的NIH项目开展自闭症相关新研究。他还委托开展了重新审视自闭症与疫苗关联的研究。
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肯尼迪强调了终身需要最高级别照护的自闭症群体的困境。该咨询委员会约三分之一的成员是重度自闭症儿童的家长。
身为一名成年自闭症患者家长的福格尔表示，该计划的多项优先级适用于整个自闭症谱系，包括那些照护需求较低的群体。
“自闭症群体中有相当一部分人高度依赖照护，且处境艰难，”她说道，并称他们的需求迫切且重大。
拟议计划呼吁各机构迅速采取行动，改善自闭症患者的胃肠道疾病、睡眠障碍、癫痫、言语和运动障碍以及心理健康状况的评估与治疗，并在上述及其他领域投入新研究。
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该计划还提议设立新的联邦资金，用于研究神经发育倒退——据估计，30%的自闭症儿童会出现这一状况，特征为丧失已掌握的技能或发育里程碑。
自闭症患病率持续上升
根据CDC数据，近几十年来自闭症患病率迅速上升，2022年8岁儿童患病率约为1/31，而2000年这一数据为1/150，部分原因是筛查手段改进以及自闭症定义范围扩大。该机构估计，其中26.7%为重度自闭症患者。
但目前尚无自闭症成人患病率的数据。草案首次呼吁联邦政府估算自闭症成人患病率。
该计划称，美国无法为有最高照护需求的人群提供足够的安全住房和专业护理人员。
“我们的目标是不再让无支持的家庭充当体系的隐形支撑，”草案中写道。
罗宾·雷斯波特报道；编辑：卡罗琳·休默、比尔·伯克罗特
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Kennedy advisers propose doubling US autism spending on care, family support
2026-08-27 10:12 AM UTC / Reuters
By Robin Respaut
August 27, 2026 10:12 AM UTC Updated 1 hour ago
U.S. Health and Human Services (HHS) Secretary Robert F. Kennedy, Jr. discusses the findings of the Centers for Disease Control and Prevention’s (CDC) latest Autism and Developmental Disabilities Monitoring (ADDM) Network survey, during a press conference at the Department of Health and Human Services in Washington, D.C., U.S.,… Purchase Licensing Rights, opens new tabRead more
Aug 27 (Reuters) – A U.S. advisory committee on autism is set to propose that federal agencies nearly double investment in research and initiatives focusing on medical care, housing, aging, and other priorities to support people with the condition and their families.
Members of the Interagency Autism Coordinating Committee, a federal advisory panel appointed by Health Secretary Robert F. Kennedy Jr. this year, will meet on Thursday to discuss their new strategic plan to reshape federal priorities in autism.
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The draft plan, made public on the IACC’s website last month, suggests boosting investment by the National Institutes of Health, U.S. Centers for Disease Control and Prevention, and other agencies to $747.4 million annually from $390.4 million to address a sweeping array of issues impacting people with autism and their families.
Current federal spending, relative to the economic burden of autism, is less than other diseases, such as Alzheimer’s and asthma, the draft plan says.
The IACC provides non-binding guidance to the federal government regarding autism-related priorities.
Kennedy, a longtime anti-vaccine activist before joining the Trump administration, for years pushed a link between vaccines and autism, which scientists say has been thoroughly refuted by studies examining millions of children over many years.
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The committee’s draft strategic plan does not mention vaccines or studying a link to autism.
OVERARCHING PRIORITIES, FOCUS ON PROFOUND AUTISM
The detailed plan has two overarching priorities: urgently improving medical care and research for people with autism; and supporting autistic people across their lifespans, especially those with complex needs.
“Individuals with profound autism, or the highest support needs, were relatively underrepresented in previous strategic plans and notably underrepresented in autism research,” said Dr. Sylvia Fogel, chair of the IACC and a Harvard Medical School instructor. “We wrote the plan to correct that inequity.”
Kennedy, who has made autism a signature issue for the U.S. Department of Health and Human Services, has pursued new studies on autism through a $50 million NIH project. He has also commissioned studies reexamining autism and vaccines.
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Kennedy has highlighted the plight of autistic individuals with the highest need for support throughout their lives. About one-third of the advisory board are parents of profoundly autistic children.
Fogel, who is the parent of an adult child with profound autism, said many of the plan’s priorities apply across the autism spectrum, including those with lesser support needs.
“There’s a significant portion of the autism community who are highly dependent on care and who are really struggling,” she said, describing their needs as urgent and significant.
The proposed plan calls for agencies to move quickly to improve assessment and treatment of gastrointestinal disorders, sleep disruption, seizures, speech and motor impairment, and mental health conditions for autistic patients, and to invest in new research in these and other areas.
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The plan also proposes new federal funding to study neurodevelopmental regression, a condition estimated to occur in 30% of autistic children characterized by the loss of previously developed skills or milestones.
RISING AUTISM PREVALENCE
The prevalence of autism has risen rapidly in recent decades to an estimated 1 in 31 children aged 8 in 2022 from 1 in 150 in 2000, according to the CDC, partly due to improved screening and a broader definition of the condition. The agency estimates 26.7% have profound autism.
Yet the prevalence of adults with autism is unknown. The draft plans calls for the federal government, for the first time, to estimate the prevalence of autistic adults.
The nation has insufficient capacity to offer safe housing and professional caregivers to those with the highest needs, the plan says.
“The aim is to stop relying on unsupported families as the system’s hidden infrastructure,” it says.
Reporting by Robin Respaut; editing by Caroline Humer and Bill Berkrot
Our Standards: The Thomson Reuters Trust Principles.
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